The PKU and OTHER HEREDITARY METABOLIC DISORDERS Foundation, is registered in the Registry of Foundations with registration number 3093 and with a resolution date on November 19, 2018.
It is subject to the Protectorate of Foundations of the Generalitat of Catalonia, a body that must take care of so that the foundational purposes, the legal provisions and the statutes of the foundations are fulfilled and so that the foundational will is respected. All this according to the third book of the Civil Code of Catalonia regarding legal persons. Furthermore, in accordance with current legislation, the Foundation is accountable annually to the Department of Health, the Department of Labor, the Audit Office and the General Audit of the Generalitat of Catalonia.
Aware that human relationships are the basic pillar for human and vital development, The PKU and OTHER HEREDITARY METABOLIC DISORDERS Foundation considers that respect for dignity, trust and integrity, autonomy and non-discrimination are essential values that must be take into account in all their care, social and outreach or pedagogical actions.
That is why The PKU and OTHER HEREDITARY METABOLIC DISORDERS Foundation maintains a legal, honest, ethical and responsible behavior that promotes, among all the relationships it establishes, from people with PKU and Other hereditary metabolic disorders, and their families, healthcare team of professionals and collaborators and the different administrations, institutions, entities, companies or individuals with whom it interacts in the development of its objectives.
- Resolution PKU-OMD Foundation
- Data protection law, data security policy
- Annual declarations
- Activity report
- Certificate of the approval agreement for the Foundation’s accounts
- Profit and Loss Account 2019